Kadin's Visit to FW (written 05/27/09)

We are on our way home right now. Kadin's appt with his lung doctor went well. She gave us a schedule awhile back to start weening him off the oxygen and we started that when they gave it to us. Shortly after we started, Kadin got sick. He was sick for a couple of weeks so we had to keep the oxygen on him during that time. We started all over on the weening after that. They had given us a target sat that they wanted Kadin to stay above and he always stays above it unless he has the monitor on and is kicking his feet. (since the probe goes on his foot) Today his pulmonologist told us she is writing an order to have the oxygen company come pick up their equipment since he is doing so well. This doesn't mean that he doesn't need to be watched. We will still need to keep a close eye on him all the time. She also said if he needs steroids between now and his next visit with her in August then we will have to look at getting inhalant steroids to keep. Not sure why, but im not worried about it either, mainly because the only time he needed them he caught a cold from one of the kids ... and since they wont be in school, chances are minimal that they will be sick this summer. So, YAY! We will see how it goes.

Before our appt this afternoon, we went to Harris Methodist to the NICU to see if we could see any of our little angels working there ... they announced we were there and within just a minute one of our favorite RT's came running out! It was awesome to see her again and all the nurses that we saw too. We also saw an off duty secretary that we absolutely ADORED and our favorite tech, too!!! The only sad part about our trip was we had planned originally to go ahead and go to Danny's daughter's graduation (KAYLIE) in Texarkana but that was made impossible since our bank acct got seized ... thank GOD for health insurance for Kadin since they pay mileage for us to go back and forth to his appointments or we wouldnt have been able to go to FW either!

Thanks for all your prayers and well wishes for Kadin and his progress ... I still can't grasp sometimes just what a little miracle he really is.