I know my updates are coming fewer and further between, but we have been busy! Since Kadin has started taking 2 out of every 3 bottles, we are there a lot more often. I was first shown how to feed him with him sitting up, but then another nurse showed me the "sideline" position and both Kadin and I love it much better. He is positioned more like he is at the breast and since this is very natural for him, he is finishing his feed in about 12 minutes. Amazing! He is still taking 47ml, which is 13ml shy of 2 ounces! He doesn't go up on his feeds quite as quickly as he once was, but he is doing very well and although he hasn't mastered bottle feeding at this point, he knows when it's time and tries his best!
We had a couple of episodes yesterday with his feed where his heartrate dropped and he quit breathing. It was so scary. My husband had never seen our baby turn blue, until yesterday. I have never liked being in there with him when it happens, but the nurse was able to help him recover from it and then he fell asleep from exhaustion afterwards! I had worried maybe he was getting sick or something and called a few times after that to check on him and he seemed to be doing just fine.
We had a lengthy conversation with his Dr. the other day. One of the first things she said was that it was her last day with Kadin, it was now her turn to rotate to Cook's and we were getting a new Dr.! My jaw dropped ... So we have yet to meet our new Dr.!
She was very encouraging in everything we talked about, though. She said it looks like maybe we will go home in about 3 weeks. BUT ... that's just a guess. It is not anything definite. We have to wait and see how Kadin is doing, of course. He is already down on his liters ... down to 2 now, from 3. He has to be at about a half a liter before he can go home. She said she might even project that he could be one that goes home without oxygen! WOW! She said he is doing THAT well. That is exciting for me to hear.....
I had asked what changed from us being told it could be 2-3 more months outside of his due date of February 23 ??? She said we are always given the worst case senario ... i.e. when we were always told "IF" he makes it out of the hospital. But as I wrote in another blog, he has exceeded all expectations of the medical staff and is doing very well! He loves not having all that junk on his face and has developed quite a little personality! I miss him more than ever when we aren't with him at the hospital. We have been able to really bond lately with his feedings.
We need to go buy a carseat now. He will have to have a carseat test and a hearing test before he goes home. He will also need to have hernia surgery and recover a few days from that, too. He will follow up with a pulmonologist and a urologist about once a month after we go home and we will see how he does. His is still on the fence with the eyes and it is to the point they think he will recover on his own but still can't make that call. If they seem to be getting worse, he will then have to have the eye surgery before he goes home. I believe the case worker said that there is a pediatric eye surgeon in Angelo, but not the others, so we will have to travel to FW for those visits. It is possible, depending on how well he does by the first visit, that our visits will be spread out a little more than once a month!
If he doesn't do well and it looks like he is going to have to have more care than we can handle with driving long distance, we have been encouraged to make a move closer to FW. I really don't want anyone other than the people here to take care of him if it gets to where we have to have more care .... but that isn't looking like it will happen so I am not going to even think about all that right now.
Just as it was an adjustment to come here and not get to go home, it is going to be an adjustment going home. I miss our home horribly, but there are things about being home that I do not miss and am not looking forward to being back around. That's for another blog, lol .... I talked to our Dr. about my working and she said it would be very dangerous for Kadin to be out with me at in my office, so I am going to have to figure some way I can work from home. There is a lot to do to catch up the books at my folks' business. I know it can be done and it will be no problem with living just 2 blocks from the office, but having him there where there is a lot of dust will be a big issue for his lungs, she said. And she said absolutely do not have him around any smoking. Ok........sigh......... lots of do's and don'ts headed our way, but it's all worth it for him to remain healthy and grow like he needs to.
My little mama .... she is starting cleaning on our house today. She is going to do the things that need to be done before we can go home, like bleach everything, shampoo, etc .... I know I owe her and my dad BIG TIME for all they have done for me and for us thru all of this, but how can you ever repay anything like that ??? In my opinion, "Thank You" is not enough. Guess I will have to figure it out ....
Well, that's about it for the update today. Kadin was last 6 pounds 2.2 ounces. His growing has slowed down a little bit because he is more active these days, and being more active burns calories, so he has slowed down .... the feeds are part of why he has slowed down, he has to work at getting his food now! We will be going to see him again in just a little bit ...
For now, I've gotta take something for these allergy and sinus issues I woke up with this morning. I hate it!!!! No fever, just sneezing and blowing my nose type of stuff .... worries me, but I gotta keep going.
Have a great and blessed Sunday people ....
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